Living with dysautonomia is a bowl full of cherries...

I'm getting ready to finally see a dys specialist. I am so nervous!! There is so much to discuss. So to ease my anxiety and be prepared I thought I would make a list of my symptoms. I thought I would share with you.

Symptoms Head to Toe

Head/Neuro
Near constant migraine headaches
Stabbing pains in head
Black-outs
Near black-outs
Dizziness
Facial, neck and chest flushing
Extreme thirst ( I call it “sick thirst”)
Brain fog
Difficulty finding words
Temperature intolerance-especially heat
Sensitivity to smells, noise, light
Blue lips
Neck pain
Hair loss
Anxiety
Depression
Insomnia!
Feeling easily overwhelmed

Abdomen:
Near constant nausea
Vomiting
Bloating
Indigestion
Diarrhea/Constipation
Cramping
Frequent urination
Kidney stones
Gallstones

Heart/ Lungs:
Tachycardia
Labile blood pressure-normal to high
Hr elevates by 30 or more beats when standing
Palpitations
Painful heartbeats
Chest pain
Shortness of breath
Difficulty drawing a breath/tightness
Feeling oxygen starved
Severe oxygen desaturation when sleeping (not apnea)/ Oxygen prescribed

Back
Neck, upper , lower back pain

Extremities:

Hypermobile Joint Syndrome
Painful joints
Reynauds
Restless legs
Red burning palms and soles of feet
Swelling of hands, feet, ankles
Pitting edema in feet
Pooling of blood in hands and feet
Purple discoloration of feet
Painful burning and tingling of hands and feet
Shaking/tremulousness of limbs
Muscle twitching


Not sure if this is all of them...will review later. Right now someone is sticking a knife in my head and back simultaneously. Migraines are fun!